Wellness And Survivorship Program and Camps

Wellness and Survivorship Program
Camps
Our Providers

Wellness and Survivorship Program

The Childhood, Adolescent and Young Adult Wellness and Survivorship Program consists of a multidisciplinary team focused on recognizing and managing potential late effects that can occur as a consequence after treatment for childhood cancers and/or following stem cell transplant.

Known and unknown effects of treatment can affect the brain, eyes, ears, lungs, heart, liver, gastrointestinal tract, kidneys, and bladder, as well as the skeletal, reproductive and endocrine systems. The program is focused on educating survivors regarding their long term health risks and addressing these needs by providing survivors with comprehensive medical and psychosocial care. Furthermore, the Wellness and Survivorship Program has the ability to utilize our experience with this unique patient population to develop and implement various clinical research projects that will contribute to the field of long term survivorship. Overall the program is equipped to design and deliver customized and personalized therapy for each long term survivor of their childhood cancer and/or stem cell transplant.

Key Contacts

Director
Jessica Hochberg, MD
Jessica.Hochberg@wmchealth.org
914.614.4270

Clinical Program Coordinator
Brittany Huber, RN, MSN, FNP-C
Brittany.Huber@wmchealth.org
914.594.2610

Social Work
Brianna Ghelarducci, MSW
Brianna.Ghelarducci@wmchealth.org
914.493.7369

Clinical Trials

Services Provided

Monitoring for and managing physical late effects
Providing health education to survivors regarding their diagnoses, treatment exposures, and potential late effects
Providing referrals to specialists and resources as indicated
Encouraging wellness and health promotion activities
Addressing psychosocial needs of survivors and affected family members
Assessing and providing intervention for educational and/or vocational needs
Assisting with financial and insurance issues
Guiding transition from pediatric to adult focused healthcare
Empowering survivors to advocate for their own healthcare needs
Facilitating survivorship research

Unique Features

Optimal healthcare delivery to this unique population requires the establishment of necessary infrastructure, including several key components:

Longitudinal care utilizing a comprehensive multidisciplinary team approach
Continuity, with a single healthcare provider coordinating needed services
An emphasis on the whole person, with sensitivity to the cancer experience and its impact on the entire family
Academic setting to allow for establishment of a specialized multidisciplinary follow-up team to care for large numbers of survivors
Targeted individualized studies to evaluate organ function and monitor for late effects based on the survivor’s treatment history
Comprehensive psychosocial evaluation, guidance, and vocational assistance

Key Team Members/Disciplines

The core team will include a pediatric oncologist, nurse coordinator, social worker, data manager and clinical research associate. Surrounding the core survivorship team will be a group of physician specialists familiar with evaluating problems in childhood cancer survivors. Such specialties will include radiation oncology, cardiology, pulmonology, orthopaedics, neurology, endocrinology, urology, audiology/ENT, nephrology, gastroenterology, nutrition, dental and psychology. Team members include:

Director: Jessica Hochberg, MD

Clinical Program Coordinator: Tara Giblin, MS, MPH, CPNP

Radiation Oncology: Chitti Moorthy, MD

Cardiology: Deborah Friedman, MD

Pulmonology: Christy Kim, MD

Endocrinology: Richard Noto, MD

Nephrology: Robyn Matloff, MD

Orthopaedics: David Asprinio, MD

Neurology: Wendy Silver, MD

ENT/Audiology: Lynn De Serres, MD

Gastroenterology: Stewart Berezin, MD

Neuropsychology: Suzanne Braniecki, PhD

Social Work: Briana Ghelarducci, MSW

OB/GYN: Amy Vallerie, MD

Fertility: Matthew Lederman, MD with Reproductive Medicine Associates

Genetic Testing: Maryam Banikazemi, MD

Neuro-Ophthalmology: Scott Forman, MD

Camps

Sunrise Day Camp
Pearl River 600 Bear Ridge Rd.
Pleasantville, NY 10570
914.741.0333

Ages 3-16 day camp for children with cancer and their siblings

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Camp Sunshine
35 Acadia Rd.
Casco, ME 04015
207.655.3800

All ages. A unique program offering year-round programs for children with life-threatening illnesses and their immediate families.

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Camp Simcha
151 West 30th St.
New York, NY 10001
212.699.6661

Ages 6-21 in treatment or remission. Camp Simcha is a kosher facility.

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The Hole In The Wall Gang Camp
565 Ashford Center Road
Ashford, CT 06278
860.429.3444

Year-round center for children and their families coping with cancer, sickle cell anemia, and other serious illnesses.

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Double H Ranch
97 Hidden Valley Rd.
Lake Luzerne, NY 12846
518.696.5676

Ages 6-16. Camp and year-round activities

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Happiness Is Camping
2169 Grand Concourse
Bronx, NY 19453
718.295.3100

Ages 6-14. A traditional sleep-away camp for kids with cancer located in Blairstown, NJ

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KiDS NEED MoRE
P.O. Box 305
Copiague, NY 11726
631.608.3135

A nonprofit charitable organization dedicated to enhancing the lives of children, families and young adults coping with cancer and life-threatening illness.

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Camp Good Days & Special Times
1332 Pittsford-Mendon Rd.
Mendon, NY 14506
1.800.785.2135

All ages in treatment or in remission

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